My daugther had been having problems hearing me and always wanted me to turn things louder or "say it again" because she didnt hear. Her PediDoc send us to an ENT. They removed her inlarged tonsils and infected tonsils thinking that was the reason. At her 6 week check up after surgery the adiologist performed several hearing test. She did perfect with her right ear but failed all in her left ear. The Doctor then set up an ABR hearing test and sedated her. With this hearing test they diagnosed her with Profound Mixed Hearing loss.
We have been to several audiologist and i am still so confused. Audiologist #1 says that no hearing aid will ever help her hear from that ear again. Audiologist #2 told me she would need to wear two hearing aids in both ears but she wouldnt recommend it since schools have programs to help now days. She also told me that she thinks it is profound sensorineural hearing loss. So you can see how confused I am at this point. I tried calling alot of different audiologist just to get a third opinion but it seems as if they all dont take her insurance or they only see children 5 years and older. Her health insurance doesnt cover hearing aids. It just covers the first hearing test that diagnosed her with hearing loss. Now she needs to go through a hearing test every 6 months and we have to pay out of pocket for that. I am not complaining because no amount of money equals to how much my daughter and her health mean to me.
Being a mom i tried to figure out how this happened. I went as far as requesting her newborn hearing screening. Of course I knew she passed because they gave me a paper saying she did but i had to see it again. When these papers came in it showed she failed on her left ear twice before she passed the third so they passed her. Why didn't anyone tell me this? I keep thinking that if we would have known we would have followed up on it and even if she had a little hearing in that ear we couldnt of done something then that would have prevented her from lossing all her hearing. I know there is nothing we can do now to change this but i am still wondering the what if's. I know i should leave it alone because the God has his plans for everyone and this just happened to be in her plan. However i thought to myself cant I do something about the hospital for not giving me that information. Isn't that the same things as false information? Should I get legal help with this? I am just so lost and confused and I dont know what my next step is.