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Babies with Heart Conditions
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This is a group for parents/family and friends who have children with heart conditions.
Members: 10
Latest Activity: Sep 24, 2012
Discussion Forum
HCM: Hypertrophic Cardiomyopathy.
Started by Nyoka Alexander Apr 4, 2011. 0 Replies 0 Likes
I was born with this disease, and it runs in my family. My cardiologist tested me when I was pregnant to see if they could isolate the gene that caused it, and they couldn't. They brought me in once…Continue
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Comment by Katie, Mom365 Host on September 24, 2012 at 6:21pm -
Stacy, that's great news! Yay!
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Comment by Stacy Stidham on September 24, 2012 at 4:57am
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He's 15 months now :)
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My son no longer has WPW :) one happy mom
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Comment by Katie, Mom365 Host on January 18, 2012 at 5:04pm
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Wow, that is so good that you noticed it. How's he doing?
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I took him to the dr because his breathing was a concern to me and anyone that would hold him. i went to the dr and the nurse took his vitals and i notice his heart rate on the pulse ox it was 212 i was like omg get the dr so the dr and the other staff of drs came and listen she told me he had tachydsypnea and also she said it sounded like he had a murmur... so i rushed him to the childrens hosptial and they worked him up and the cardiologist looked him over and fewed him for a few days. i was lucky to have found this most children dont experience these symptoms till their much other they complain of dizziness fast heart rate. i feel very blessed to of found out about this sooner because if causes sudden death.
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Comment by Katie, Mom365 Host on September 1, 2011 at 4:59pm
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How did you discover that, Stacy? Were there symptoms or evidence of a problem?
Hope he is doing ok on the meds!
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I recently found out my son at 3 weeks old, now 6 weeks old has
Wolff-Parkinson-White syndrome, a heart condition in which there is an extra electrical pathway (circuit) in the heart. The condition can lead to episodes of rapid heart rate (tachycardia).
I have to give him medicine every 8 hours and at 3 months and 6 months his dosage goes up, he has to take this medicine till he is 1 year old. At that time I'm told it well go away, and hopefully not come back, but if it does he will have to cont. to take the medicine till hes older then he would have to have a catheter ablation. This procedure involves inserting a tube (catheter) into an artery through a small cut near the groin up to the heart area. When the tip reaches the heart, the small area that is causing the fast heart rate is destroyed using a special type of energy called radiofrequency-electrical cardioversion (shock).
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