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Mothers instincts

My lil boy was born 12/13/11 at 2 weeks old I started feeling like something was wrong with him brought to the doctors over n over at 4 months brought him to the hospital cause he was so congested he wasn't breathing right they sucked his nose n sent us home from that point on I went crazy switched doctors got diagnosed with ppd everyone was telling me there was nothing wrong but I knew there was. His new doc ran alergy test blood work everything but everything came back fine!!! Because we switch docs he went in for his 6 month shots at almost 7 months the day after his shots he had a high fever, twitching, shaking swallowing his tongue so scary we here we come!!!! There they did blood work white cells were elevated so they ordered a chest X-ray they can back an tell me he is being admitted WTH my nevers took over shaking I was! But even with all this my baby was smiles an happy he always is! Next morning they send us for n ultra sound of his chest OMG no ones really telling me anything! His pedi came in the morning and said we would be going home in the afternoon great I thought!!! Thought wrong ultrasound came back now my baby needs a cat scan WTH HE IS ONLY 7 months. They found a tumor the size of a grapefruit in between his lung n heart devastated I was but deep down I knew it I always said something was wrong!!!! 2 weeks in the hospital tumor taken out n still waiting to see hemock for more testing!!!! But we have faith!!!!! What turned into a scare turned into a nightmare hopefully turns into just a short story to tell n he grows happy n healthy!

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Permalink Reply by EastTexasMommy on August 15, 2012 at 3:41am
wow! Keep on them Dr's. Glad he is doing well and the problem has been found. (going through similar... Daughter had bad allergic reaction to ____unknown___ with multi test and back pricks, no answers).
Permalink Reply by De'Lin N Moises on August 15, 2012 at 12:39pm
Our pedi even had asked the surgeons the hemock people did he miss something and the answer was n is no he did n order everything it was by luck a scary one that this was found. I lived at the hospital for weeks n no matter who I spoke to they all said the same they didn't know exactly when or why Jacen my 7 month old had this. But me as his mother knew I still have a small feeling something ain't right but no where near what I was feeling. Everyone thought I was nuts some even thought I wished something wrong with him but in all a mothers instincts is usually right! Our pedi now even though before listened but now ask much more detailed question when I express a feeling or concern! Good luck with your baby may all your worries n questions be answered with a positive response
Permalink Reply by Shannon, Star Mom on August 15, 2012 at 11:45am

So sorry to hear you are going through this, but stay strong b/c this was a miracle that this was found so early on... a TRUE miracle.  I say this because my nephew went through this exact experience.  At about 2 years old he was complaining of stomach pains, so it being the weekend my sister took him in to ER.  The xray showed a shadow... days later, after the pediatrician reviewed the xray he saw the shadow was not normal.  Further xrays revealed a tumor the size of an adult fist just behind his heart.  He immediately went in for surgery to remove the tumor.  The test did reveal that it was cancerous- neuroblastoma.  By the grace of God, that tumor never attached to any vital organs nor did it spread to any other part of his body.  It is actually very common that if neuroblastoma is found early on in childhood it can be completely treated and the child can go on to live a normal, healthy life.  Of course, many children can develop a tumor and it can be completely cancer free as well.  No matter the outcome, just remember there is a reason you were so persistent, a reason this was found early on... b/c your son is meant to live a long, happy, healthy, thriving life.  So, stay positive and strong!  My nephew is now 7 years old, goes in for screenings once a year... but he's been completely cancer/tumor free since that terrible scare!

Permalink Reply by De'Lin N Moises on August 15, 2012 at 12:31pm
Thank you I am we are staying strong! It's scary but I thank god it was found so early an it was only found because a certain person at the hospital paid attention! They don't know how long he had it but it was the size of a grapefruit and weighed a lil over a pound.... God bless your nephew and you whole family I know it is hard!
Permalink Reply by Jen, Mom365 Host on August 15, 2012 at 1:53pm

Always listen to your instincts! They're a powerful tool. I'm so sorry you're all going through this, but glad it was caught now and not when things had gotten even worse. Hopefully the surgery corrected everything, and the tumor doesn't grow back.

Permalink Reply by Maggie on August 15, 2012 at 6:44pm

What a brave mom you are!  Your son is so lucky to have you.  I will be praying for his continued recovery and for a healthy life for him from here on out.

Permalink Reply by JT'sMom on August 17, 2012 at 2:31pm

I am so sorry to hear that he had that problem. I hope he's doing better now! But I am able to completely understand how you felt with all that. My lil boy was in the hospital for 5 months and had mulitple MRI's done and such. But I am very glad to hear that he was all smiles and such. It's amazing how when we freak out, they act like nothing is wrong. You are a very smart and strong mother, wish you and your son all the best

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